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The Cute Syndrome Foundation Is Currently Funding
SCN8A Epilepsy
Research!
SCN8A Epilepsy
is a rare disorder
, caused by genetic mutations in the gene SCN8A, and it is still in the early stages of being diagnosed and understood.
Our team at The Cute Syndrome Foundation is working hard
to bring
SCN8A into the light
, to fund the dedicated and talented researchers working to better understand it, and to support the families who are affected by this disorder.
But, we can't do it alone:
We need your help--your donations, your volunteer time, and your social media support in order to continue to make big things happen for this small, but growing, community.
With our partner organizations we have helped to fund a series of SCN8A projects including
Dr. Ted Cummin's Zebrafish research
,
Dr. Michael Hammer's SCN8A Registry
,
Dr. Miriam Meisler's SCN8A research at the University of Michigan
, our
SCN8A Clinician Reference Guide
, and our
annual SCN8A Clinician, Researcher, and Family Gathering
.
In the past
The Cute Syndrome Foundation has made amazing progress with funding PCDH19 research.
Read more about the PCDH19 research we are funding.
SCN8A Warriors
Make sure to check out our
SCN8A Warriors
page to see some of the cute faces behind the cute syndrome!
Follow us on Instagram @thecutesyndrome!
Past Annual Reports
Past PCDH19 Efforts
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
Our tax identification number is: 46-2699066.
© The Cute Syndrome Foundation, All rights reserved
Home
About
About SCN8A
About Us
Volunteers
Sponsors
2017 Annual Report
Families
SCN8A Warriors
Reference Guide
Events
CRF Gathering
Awareness Day
Research
Research Grants
SCN8A Registry
Donate
How You Can Help
PLAE
Contact
Blog
Shop