The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
  • Home
  • About
    • About SCN8A
    • About Us
    • Volunteers
    • Sponsors
    • 2017 Annual Report
  • Families
    • SCN8A Warriors
    • Reference Guide
  • Events
    • CRF Gathering
    • Awareness Day
  • Research
    • Research Grants
    • SCN8A Registry
  • Donate
    • How You Can Help
    • PLAE
  • Contact
  • Blog
  • Shop

TCSF SCN8A Volunteers


We are a 100% volunteer-run organization!


Picture

Hillary Savoie, PhD

Founder and Co-Executive Director, Writer, Storyteller, Advocate -- and Esmé's Mom

Hillary Savoie, PhD is the Founder and Director of The Cute Syndrome Foundation. Her daughter Esmé has mutations in PCDH19, SCN8A, TBL1XR1, and MAP 3K7. Hillary holds a doctorate in Communication and Rhetoric from Rensselaer Polytechnic Institute. Hillary writes about life with Esmé for Romper.com and her personal blog. She is the author of two short memoirs about life with Esmé: Around And Into The Unknown and Whoosh.
Follow Esmé
Picture

Juliann Bradish, PharmD

Co-Executive Director, Pharmacist -- and Adeline's Mom

Juliann Bradish, PharmD, is a pharmacist, wife, and mom of 3 little girls and one baby boy!  She spends most of her time feeding little mouths, playing referee to battles of willful children, doing crafts, going on adventures, enjoying the blissful chaos of motherhood, and advocating for those with SCN8A mutations.  Her second daughter Adeline has SCN8A Epilepsy.  During the time she's lucky enough for all three girls to take naps, she carries out her roles as site manager for her daughter’s awareness site, “SCN8A-Help Adeline Find Answers”, Creator and Administrator for the SCN8A Families Support Group, and Co-Executive Director of The Cute Syndrome Foundation.
Follow Adeline

Family Support Volunteers

Picture

Shelley Frappier

Facebook Support Group Moderator
​Canada / Nico's Mom
Picture

Katie Banks

Facebook Support Group Moderator
USA / Wyatt's Mom
Follow Wyatt
Picture

Jennifer Costello

New Families Outreach
​USA / Jonah's Mom
Follow Jonah

Media & Tech Volunteers

Picture

Dianely Cabrera

Social Media Coordinator & Outreach
​USA / Max's Mom
Follow Max
Picture

Megan Varner

Graphic Designer
USA / Lily's Sister

Picture

Jaden Bitton

Website Design & Social Media
​USA / Lennon's Mom
Follow Lennon
Picture

Daniel Braz

International Media Strategist
​Brazil / Rafael's Dad
Picture

Natan Pinheiro

International Tech Strategist
Brazil / Rafael's Uncle
Picture

Alisha Wheeldon

Registry Liaison
USA / Clayton's Mom

Special Events Volunteers

Picture

Megan Gard

Family Fundraising Liaison
​USA / Clayton's Mom
Follow Clayton
Picture

Sandy McClurg Bush

Annual Gathering Volunteer
​USA / Cam's Mom
Picture

Trisha Rathke

Travel & Events Coordinator
​USA / Megan's Mom
Follow Megan

Administration & Strategy Volunteers

Picture

Karen Hess Varner

Grant Writing & Outreach
USA / Lily's Mom

Picture

Mali Finn

Administrative Support Volunteer
​USA / Elowen's Mom
Follow Elowen
Picture

Colleen Revene Johnston

Sponsorship and Corporate Grant Coordinator
USA / Emma's Mom
Follow Emma
Picture

Wendy Woody

Accountant
USA / Brandon's Mom
Powered by Create your own unique website with customizable templates.
  • Home
  • About
    • About SCN8A
    • About Us
    • Volunteers
    • Sponsors
    • 2017 Annual Report
  • Families
    • SCN8A Warriors
    • Reference Guide
  • Events
    • CRF Gathering
    • Awareness Day
  • Research
    • Research Grants
    • SCN8A Registry
  • Donate
    • How You Can Help
    • PLAE
  • Contact
  • Blog
  • Shop